Fighting Lou Gehrig's Disease on Every Front!

Our Mission: To lead the fight to cure and treat ALS through global, cutting-edge research, and to empower people with Lou Gehrig’s disease and their families to live fuller lives by providing them with compassionate care and support.

Wednesday, November 17, 2010

The ALS Volunteer Connection


A new and exciting service is being offered through The ALS Association (ALSA) Michigan Chapter. The ALS Volunteer Connection is a state-wide program that has been established to help improve the quality of life for PALS and caregivers. We understand that the role of the caregiver is not easy and can quickly lead to caregiver burnout. It is important to realize that one must take care of himself in order to take care of another person. The aim of the volunteer program is to match volunteers with caregivers in their area to allow caregivers to have some time to themselves. Caregivers may submit a Caregiver Request form and mark off tasks they would like the volunteer to assist with including errands, preparing meals, companionship, and more. If interested in receiving a request form, caregivers can call 866-927-CURE. We are very excited to provide this program and believe it will be of great assistance to those involved.

The ALS Volunteer Connection
“Putting patients and families first”

Wednesday, September 15, 2010

Steve Langerak Winner of "Family Caregiver of the Year" Award






Jenison Man Selected as Winner of “Family Caregiver of the Year” Award
Steve Langerak awarded Local Prize and $500

Grand Rapids, MI September 8, 2010— The winner of the 2010 “Family CareGiver of the Year” for West Michigan was announced by the Homewatch CareGivers office in Grand Rapids today. Steve Langerak of Jenison was chosen for his unselfish dedication to his wife and for “being her legs, arms, and voice.” Steve will receive the $500 local prize and will be among the finalists for the title of National Family Caregiver of the Year and a $5000 prize.

Homewatch CareGivers commissioned the award because it became crystal-clear that the family caregiver is usually under-appreciated and in need of moral support. “Everyday”, said Jeff Swain, President of Homewatch CareGivers of West Michigan, “our team sees first-hand the devoted love and kindness family caregivers provide to their mothers, fathers, siblings, children, and spouses. Most of the stories are especially poignant. The selection panel chose Steve’s story because of his unbelievable sacrifice and dedication to his wife, an A.L.S. patient.”

Steve Langerak had been married for 40 years to his wife, Sally. When Sally was diagnosed with ALS, Steve chose to leave his job because he wanted to spend more time with his wife. Steve completely rearranged his life to ensure Sally received the love, care, and attention she needed, which quickly became round-the-clock care. Steve was adamant about having her stay in their home, despite the fast-progressing disease that left her unable to do anything on her own. In addition to tube-feeding her, he took care of every one of her personal needs, including dressing, toileting, and grooming; he worked tirelessly to keep her spotless. Handling all the household duties, navigating the health care world, and overcoming obstacles to obtain resources and equipment could have been a full-time job by itself.

Tragically, Sally passed away in August of this year. Carole Black, Steve’s mother-in-law, said that Steve “never complained and never asked for help. He was her legs, arms, and voice. If it wasn’t for Steve, I know that Sally would not have lived as long as she did. ”

Steve takes his tremendous sacrifices in stride. He said that he did things for her that he should have done 40 years ago. “You shouldn’t wait until a disease like this comes along to take care of someone you love.”

Denise George, patient services co-coordinator at the A.L.S. Association of Michigan, nominated Steve. A select panel of local experts – including representatives from the Gerontology Network, Senior Neighbors, and The Alzheimer’s Association – was assembled to vote on the award.

The National Family Caregiver of the Year will be announced in October, by Homewatch International in Denver. For more information on this program or Homewatch CareGivers, visit www.homewatchcaregivers.com/grand-rapids.

Monday, September 13, 2010

Heath Care Reform Webinar this Week

The ALS Association Advocacy Department would like to invite people with ALS
and their family members and caregivers to join us for an informative
webinar about the new health care reform law enacted earlier this year. The
webinar will provide a general overview of health care reform and will
include a slide presentation by the Advocacy Department.

This is an opportunity for you to begin to learn how some of the key
elements of health reform will impact people with ALS and their families as
the law is implemented over the coming months and years. It also is an
opportunity for you to ask questions you may have about health care reform.

WHEN: Thursday, September 16 at 12:00pm ET

WHAT: Health Care Reform: What it Means for People with ALS and their
Families

HOW to Access the Webinar Presentation:

To join the webinar and view the presentation on your computer, go to:

https://alsa.webex.com/alsa/j.php?ED=139908717

&UID=1130829407&PW=NMjdjYzNlYzc3&RT=MiM0



Space is limited to the first 200 participants so please plan to login early
to secure your spot.



To join the audio conference:

Call-in toll-free number (US/Canada): 866-699-3239

Meeting Number: 821 586 154

Meeting Password: TopicCall2010

If you have any questions, please contact the Advocacy Department at
advocacy@alsa-national.org. We look forward to you joining us for this
webinar.

Monday, August 16, 2010

The ALS Association Announces New Grants for Research

The ALS Association, Michigan Chapter is thrilled to learn that through the August 2010 grant cycle, The ALS Association will provide grant funding to 12 worthy projects.

Researching everything from biomarkers to detect ALS to new ways to deliver stem cells, the scientests receiving funding will undoubtedly have great impact on the journey towards meaningful treatments and, eventually, a cure to ALS. For summaries of the funded projects, visit http://alsa.org/news/article.cfm?id=1666 .

This is an exciting time for ALS research. For the latest news on what is happening in the scientific community, watch the ALSA website or contact us for email updates: kristen@alsa-michigan.org or denise@alsa-michigan.org.

Monday, July 12, 2010

Educational Conference

Respiratory Issues and Equipment Commonly Seen with ALS Patients.

Presented by Airway Oxygen Inc. Home Medical Equipment & Philips Respironics

Please join us for this free educational conference presented by Mark Orlikowski of Airway Oxygen and Daryle Sawyer of Philips Respironics. For those with ALS, respiratory issues are probably the most serious of medical complications. Mark and Daryle will be addressing this topic and some of the equipment that is currently available.

Date & Time: August 4th 2010 from 6:30pm-8:00pm.
Located at

Munson Community Health Center Classrooms A & B.
550 Munson Ave
Traverse City, 49684

Mark Orlikowski, LRT
Branch Manager
Airway Oxygen Inc.
1364 Trade Centre Drive
Traverse City, Mi 49686
morlikowski@airwayoxygeninc.com

Daryle S. Sawyer RRT/LRT

Respiratory Sales Specialist
Sleep and Home Respiratory Group
Philips Home Healthcare Solutions
1001 Murry Ridge Lane, Murrysville PA 15668
Mobile #. 616-610-0132

*Please RSVP to Denise George at the ALS Association if you plan to attend. There is no cost and friends and family are encouraged to join

616.459.1900

Family Caregiver of the Year

Award to Recognize Kent County Family Members Making Personal Sacrifices

Annual Program Awards $500 Local Prize and $5,000 National Grand Prize to Nominated CareGivers Deserving Recognition

Grand Rapids, MI July 7, 2010 -To recognize the millions of family members caring for loved ones across America, Homewatch International has launched its "Family Caregiver of the Year" award program for 2010. Any individual can nominate a caregiver they know who has poignantly provided unpaid caregiving assistance to a friend or loved one. An objective panel of experts will judge all nominations and award cash prizes based on: 1) the magnitude of care and support provided, 2) personal and external obstacles overcome to provide the care, and 3) the impact their care ultimately had on the individual.

Nominations will be accepted through July 30 online at www.homewatchcaregivers.com/grand-rapids or by submitting a nomination form to the Homewatch office in Grand Rapids. In addition to the $500 Kent County award, the local winner will be a finalist for the national award, a $5,000 national grand prize. The winner will also receive a scholarship to Homewatch CareGivers University.

Local winners of the Family CareGiver of the Year award will be announced in September and the national winner in October.

"We know firsthand that caring for a family member is a huge responsibility, often with large burdens," said Margaret Dugan R.N., of the Homewatch CareGivers office in Kent county. "We recognize that our nation's family caregivers are often unappreciated and are truly deserving of any and all support they might get. This award allows Homewatch to give back to family caregivers who have given so much-and given up so much-to support their loved ones."

The 2009 Family Caregiver of the Year award winner, Laura Dover of Charlotte, N.C., has cared for her daughter Ashley full time since 2001, when Ashley suffered a severe brain injury from a tragic car accident. The Dover's story, while heartbreaking, is inspirational for others facing similar struggles. "You learn what is important in life," said Dover, after receiving the 2009 award. "What is important is family. My family has become very close due to Ashley's situation. I have also learned to be a more patient and spiritual person through this experience. The award meant the world to me."

The winner of the local prize and national prize will be chosen by a select panel of objective caregiving industry experts. In 2009, this selection panel included representatives from AARP, the Alzheimer's Association, American Association of Long Term Care Insurance, and Genworth Financial.

To nominate a familhy caregiver, please call the Homewatch CareGivers in Grand Rapids at (616) 975-1980 for an official nomination form. For more information on the Family Cargiver of the Year program and the on-line nomination form, visit www.homewatchcaregivers.com/grand-rapids

About Homewatch International
Founded in 1980 and located in Denver, Homewatch is an experienced international provider of full-service home care for people of all ages. Home care services are personalized for each client, and customized care plans are administered through an international network of 111 franchise owners with 181 territories.