Fighting Lou Gehrig's Disease on Every Front!

Our Mission: To lead the fight to cure and treat ALS through global, cutting-edge research, and to empower people with Lou Gehrig’s disease and their families to live fuller lives by providing them with compassionate care and support.

Wednesday, April 27, 2011



On May 8th, staff from The ALS Association, Michigan Chapter, volunteers and families will join others from around the country in Washington D.C. for National ALS Advocacy Day. They will spend three days in Washington, learning more about legislative needs for ALS, being updated on the latest happenings in ALS research, and meeting other ALS advocates working towards a cure.

On Tuesday, May 10th, they will "head to the Hill", sharing the stories of constituents at home with their Senators and Congressmen and asking them to support ALS research and the National ALS Registry. The most effective tool these dedicated advocates can take with them is YOUR STORY! It is so important that our legislators see that ALS has a face and is effecting the people they represent.

We need your help to advocate for ALS. Please, share your story with our Chapter, and ask your family and friends to do the same. You can email your story to us at kristen@alsa-michigan.org. Thank you!

Thursday, February 17, 2011

New Virtual Patient Services!



The Patient Services Team at The ALS Association, Michigan Chapter is very excited to be adding virtual consultation services to our program offerings. Using Skype online video-conferencing, a free service, our Patient Services Coordinators can accept appoints with PALS and families accross Michigan.

We hope that this feature will be helpful for our PALS, especially during the winter months. We recognize that sometimes distance or the physical challenges of traveling to our offices, support groups or events can be trying, and we are hopeful that using Skype to talk with our PALS will make accessing valuable information and resources easier.

If you would like to schedule an appointment with a Patient Services team member, please call our offices. For Kristen in Troy, please call 248-680-6540, screenname alsamichiganeast. For Amie in Grand Rapids, please call 616-459-1900, screenname alsawestmichigan.

To download a free version of Skype, visit Skype.com and select the "Free Video Calling" icon at the bottom of the screen. You'll need to choose a screenname and password.

Wednesday, November 17, 2010

The ALS Volunteer Connection


A new and exciting service is being offered through The ALS Association (ALSA) Michigan Chapter. The ALS Volunteer Connection is a state-wide program that has been established to help improve the quality of life for PALS and caregivers. We understand that the role of the caregiver is not easy and can quickly lead to caregiver burnout. It is important to realize that one must take care of himself in order to take care of another person. The aim of the volunteer program is to match volunteers with caregivers in their area to allow caregivers to have some time to themselves. Caregivers may submit a Caregiver Request form and mark off tasks they would like the volunteer to assist with including errands, preparing meals, companionship, and more. If interested in receiving a request form, caregivers can call 866-927-CURE. We are very excited to provide this program and believe it will be of great assistance to those involved.

The ALS Volunteer Connection
“Putting patients and families first”

Wednesday, September 15, 2010

Steve Langerak Winner of "Family Caregiver of the Year" Award






Jenison Man Selected as Winner of “Family Caregiver of the Year” Award
Steve Langerak awarded Local Prize and $500

Grand Rapids, MI September 8, 2010— The winner of the 2010 “Family CareGiver of the Year” for West Michigan was announced by the Homewatch CareGivers office in Grand Rapids today. Steve Langerak of Jenison was chosen for his unselfish dedication to his wife and for “being her legs, arms, and voice.” Steve will receive the $500 local prize and will be among the finalists for the title of National Family Caregiver of the Year and a $5000 prize.

Homewatch CareGivers commissioned the award because it became crystal-clear that the family caregiver is usually under-appreciated and in need of moral support. “Everyday”, said Jeff Swain, President of Homewatch CareGivers of West Michigan, “our team sees first-hand the devoted love and kindness family caregivers provide to their mothers, fathers, siblings, children, and spouses. Most of the stories are especially poignant. The selection panel chose Steve’s story because of his unbelievable sacrifice and dedication to his wife, an A.L.S. patient.”

Steve Langerak had been married for 40 years to his wife, Sally. When Sally was diagnosed with ALS, Steve chose to leave his job because he wanted to spend more time with his wife. Steve completely rearranged his life to ensure Sally received the love, care, and attention she needed, which quickly became round-the-clock care. Steve was adamant about having her stay in their home, despite the fast-progressing disease that left her unable to do anything on her own. In addition to tube-feeding her, he took care of every one of her personal needs, including dressing, toileting, and grooming; he worked tirelessly to keep her spotless. Handling all the household duties, navigating the health care world, and overcoming obstacles to obtain resources and equipment could have been a full-time job by itself.

Tragically, Sally passed away in August of this year. Carole Black, Steve’s mother-in-law, said that Steve “never complained and never asked for help. He was her legs, arms, and voice. If it wasn’t for Steve, I know that Sally would not have lived as long as she did. ”

Steve takes his tremendous sacrifices in stride. He said that he did things for her that he should have done 40 years ago. “You shouldn’t wait until a disease like this comes along to take care of someone you love.”

Denise George, patient services co-coordinator at the A.L.S. Association of Michigan, nominated Steve. A select panel of local experts – including representatives from the Gerontology Network, Senior Neighbors, and The Alzheimer’s Association – was assembled to vote on the award.

The National Family Caregiver of the Year will be announced in October, by Homewatch International in Denver. For more information on this program or Homewatch CareGivers, visit www.homewatchcaregivers.com/grand-rapids.

Monday, September 13, 2010

Heath Care Reform Webinar this Week

The ALS Association Advocacy Department would like to invite people with ALS
and their family members and caregivers to join us for an informative
webinar about the new health care reform law enacted earlier this year. The
webinar will provide a general overview of health care reform and will
include a slide presentation by the Advocacy Department.

This is an opportunity for you to begin to learn how some of the key
elements of health reform will impact people with ALS and their families as
the law is implemented over the coming months and years. It also is an
opportunity for you to ask questions you may have about health care reform.

WHEN: Thursday, September 16 at 12:00pm ET

WHAT: Health Care Reform: What it Means for People with ALS and their
Families

HOW to Access the Webinar Presentation:

To join the webinar and view the presentation on your computer, go to:

https://alsa.webex.com/alsa/j.php?ED=139908717

&UID=1130829407&PW=NMjdjYzNlYzc3&RT=MiM0



Space is limited to the first 200 participants so please plan to login early
to secure your spot.



To join the audio conference:

Call-in toll-free number (US/Canada): 866-699-3239

Meeting Number: 821 586 154

Meeting Password: TopicCall2010

If you have any questions, please contact the Advocacy Department at
advocacy@alsa-national.org. We look forward to you joining us for this
webinar.

Monday, August 16, 2010

The ALS Association Announces New Grants for Research

The ALS Association, Michigan Chapter is thrilled to learn that through the August 2010 grant cycle, The ALS Association will provide grant funding to 12 worthy projects.

Researching everything from biomarkers to detect ALS to new ways to deliver stem cells, the scientests receiving funding will undoubtedly have great impact on the journey towards meaningful treatments and, eventually, a cure to ALS. For summaries of the funded projects, visit http://alsa.org/news/article.cfm?id=1666 .

This is an exciting time for ALS research. For the latest news on what is happening in the scientific community, watch the ALSA website or contact us for email updates: kristen@alsa-michigan.org or denise@alsa-michigan.org.